To assess cancer burden among Rhode Islanders using The Rhode Island Cancer Registry (RICR).
The RICR is the central repository of information and is a valuable and essential tool in the identification of populations at risk for cancer, monitoring of cancer incidence trends, facilitation of studies related to cancer prevention, evaluation of cancer control initiatives, and development of educational awareness programs. RICR collects and submits all reportable cancer cases, including all related data items required by CDC NPCR (National Program for Cancer Registries) and NAACCR (North American Association of Central Cancer Registries) specifications, complying codes and format prescribed by the central cancer registry standard setters (NPCR, NAACCR, SEER and etc.). RICR collects cancer data on patients who were newly diagnosed or received the first course of treatment in Rhode Island (regardless of residential status). All submitted cases (abstract & M-records) by the reporting facilities are systemically reviewed, processed and monitored. Reportability, completeness, timeliness and quality are validated throughout the year, by conducting internal and external audits and quality assurance procedures. RICR uses standardized data exchange format, and annually transmits electronic data files to CDC and NAACCR. RICR is part of the NPCR Cancer Surveillance System (CSS), US Cancer Statistics, and Cancer in North America (CiNA) dataset. RICR’s cancer “reportability” and administrative requirements can be read at: https://rules.sos.ri.gov/regulations/part/216-10-10-2
RICR provides statewide aggregate reports (see below) and downloadable data on this webpage. Research investigators or requestors who want to obtain detailed or confidential information on cancer reporting are recommended to contact RICR. Confidential information are strictly protected by law and not for public disclosure. These include individual cancer case, patient and provider related information. A small number of cancer incidence in a small geographic area is also prohibited to be released. To obtain confidential RICR data for research purpose, researchers need to obtain appropriate approvals from RICR and Institutional Review Board.