Prion (Creutzfeldt-Jacob Disease)
Clinical Specimen Submission Guidance
Submit all specimens to 50 Orms St, Providence RI 02904. Open Monday to Friday 8:30 AM to 4:30 PM
Special Pathogens & Biothreats Laboratory 401-222-5586
Prion
Creutzfeldt-Jacob Disease (CJD)
PREAUTHORIZATION by the RIDOH Center for Acute Infectious Disease Epidemiology is required (401) 222-2577 for testing.
If testing is approved, specimens are sent to the CJD National Prion Disease Pathology Surveillance Center (NPDPSC). Further testing information, fees and required form(s) are available at www.cjdsurveillance.com
PREAUTHORIZATION by the RIDOH Center for Acute Infectious Disease Epidemiology is required (401) 222-2577 for testing.
Consult with the RISHL Special Pathogens & Biothreats Laboratory at (401) 222-5586 for guidance on specimen selection, collection and submission.
CLIA regulations require two patient identifiers on the specimen container and the test requisition
Rhode Island State Health Laboratories (RISHL) test requisition form https://health.ri.gov/forms/LabRequisitionForm.pdf
CJD National Prion Disease Pathology Test Request Form
Primary Specimen
Consultation with the RISHL Special Pathogens & Biothreats Laboratory is required prior to transport.
Specimens must be packaged & transported in accordance with current federal shipping regulations.
Containers specifically labeled for transport of specimens and isolates to the RISHL Special Pathogens & Biothreats Laboratory are available in all Microbiology Laboratories and Laboratory Sendout Departments.
Providers must report patient information on Creutzfeldt-Jacob Disease (transmissible spongiform encephalopathy) within 4 days using the RIDOH reportable disease form.
Unknown (testing performed by NPDPSC)